Melissa Mannion
University of Alabama at Birmingham, AL·Medicine & Clinical Research·Early-career
Juvenile idiopathic arthritis (JIA) is the most common rheumatic disease of childhood. It is lifelong and needs long-term treatment to prevent pain, loss of function and permanent damage.
- Fields
Medicine & Clinical Research
Public Health & Epidemiology
- Topics
juvenile idiopathic arthritis
pediatric rheumatology
shared decision making
- Grants
- 1 known grant, through Aug 2028
What they work on
- Identify the characteristics a treatment-escalation shared decision-making tool for juvenile idiopathic arthritis needs, using nominal group technique with patients, parents and providers.
- Compare how adolescents with JIA and their parents prioritize medication choices and treatment goals, using a discrete choice experiment and latent class analysis.
- Develop a decision aid for joint adolescent, parent and provider decisions at the time of treatment change, and pilot test it in a pediatric rheumatology clinic.
More about the research
Guidelines cover the first treatment, but when it fails the next best option is less clear. The choice depends on the preferences of patients, parents and doctors. Shared decision making (SDM), in which these people decide together, is recommended. In practice it is rarely used, and in pediatrics parents often make the decisions. Adolescents and parents can see symptoms and treatments differently, but it is unknown how such disagreement affects preferences, decisions and outcomes.
Why it matters
Adolescents with JIA and their families often face unclear choices when the first treatment fails. A decision aid that brings out both teen and parent preferences could reduce decisional conflict, improve satisfaction with care and help families choose treatments that fit their goals. In turn, this may improve quality of life and disease outcomes.
Known grants
From NIH and NSF research grants. Labs often have other funding we can't see.
Closest labs
Laura Cabrera Trujillo
Pennsylvania State University, PA·Medicine & Clinical Research
Identify neuroethical concerns and decision-making needs about early versus late use of advanced neurotechnology, using interviews and validated instruments with patients, caregivers and clinicians.
Ushma Upadhyay
University of California-San Francisco, CA·Public Health & Epidemiology
Compare telehealth and in-person reproductive healthcare for timing, costs, follow-up care and unplanned in-person visits, in two cohorts of 1,000 patients each recruited at clinics and through Google Ads.
Ilene Hollin
Temple University, PA·Medicine & Clinical Research·Early-career
Describe quality-of-life priorities and how they shape decisions among patients and caregivers at each phase of lung transplant, and among clinicians, using semi-structured interviews.
The school
University of Alabama at Birmingham: 45 labs on PI Pages, $866M a year on research, 166 research doctorates a year.
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