Ilene Hollin
Temple University, PA·Medicine & Clinical Research·Early-career
For people with end-stage lung disease, deciding whether to pursue a lung transplant is complex. They must weigh possibly longer survival against risks and changes in daily life.
- Fields
Medicine & Clinical Research
Public Health & Epidemiology
Social Science
- Topics
lung transplant
end-stage lung disease
decision aid
- Grants
- 1 known grant, through Jan 2028
What they work on
- Describe quality-of-life priorities and how they shape decisions among patients and caregivers at each phase of lung transplant, and among clinicians, using semi-structured interviews.
- Measure quality of life, outcome priorities and willingness to trade length of life for quality in 200 patients and 200 caregivers considering lung transplant, using best-worst scaling and treatment tradeoff exercises over time.
- Develop a lung transplant decision aid and test its feasibility and acceptability with 30 patient–caregiver pairs considering transplant.
More about the research
Decision aids are tools that explain options and help patients choose. Clinical trials show they improve understanding and reduce decisional conflict, the distress of feeling unsure about a choice. Few decision aids address lung transplant, partly because patients and caregivers lack good information on how transplant affects quality of life (QoL).
Why it matters
Patients with end-stage lung disease and their caregivers face a hard choice about lung transplant. Knowing which quality-of-life outcomes they value most could improve how clinicians explain the risks and benefits of transplant. A decision aid built on these priorities could reduce decisional conflict about whether to seek a transplant evaluation.
Known grants
From NIH and NSF research grants. Labs often have other funding we can't see.
Closest labs
Laura Cabrera Trujillo
Pennsylvania State University, PA·Medicine & Clinical Research
Identify neuroethical concerns and decision-making needs about early versus late use of advanced neurotechnology, using interviews and validated instruments with patients, caregivers and clinicians.
Laura Siminoff
Temple University, PA·Public Health & Epidemiology
Identify which provider communication behaviors during transplant evaluation consultations lead to living-donor inquiries, evaluations and transplants, using audio-recorded visits for 120 patients and pre- and post-visit surveys.
Fahad Saeed
University of Rochester, NY·Medicine & Clinical Research
Determine whether the CKD-EDU palliative care intervention, a decision aid plus palliative clinician coaching, reduces decisional conflict at one month in patients aged 75 or older with advanced CKD.
The school
Temple University: 22 labs on PI Pages, $315M a year on research, 238 research doctorates a year.
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