Laura Cabrera Trujillo
Pennsylvania State University, PA·Medicine & Clinical Research
Advanced neurotechnologies, such as devices that stimulate the brain, are increasingly being offered earlier in a disease rather than only as a last resort. Early use may bring benefits, but it also raises hard ethical questions.
- Fields
Medicine & Clinical Research
Social Science
Neuroscience
- Topics
neuroethics
shared decision making
patient decision aid
- Grants
- 1 known grant, through Apr 2028
What they work on
- Identify neuroethical concerns and decision-making needs about early versus late use of advanced neurotechnology, using interviews and validated instruments with patients, caregivers and clinicians.
- Develop a patient-centered decision aid for advanced neurotechnology, guided by the interview findings and the International Patient Decision Aids Standards (IPDAS) guidelines.
- Evaluate whether patients and clinicians find the decision aid understandable and acceptable.
- Test, in a small-scale study, whether the decision aid is feasible and how it affects treatment choices and timing, knowledge, decisional conflict, satisfaction or regret, and patients' sense of involvement in care.
More about the research
Patients must weigh risks and uncertain benefits, sometimes while still fairly well. Clinicians must decide when it makes sense to raise these options. Little research has looked at what patients, caregivers and clinicians worry about or need in order to decide well. Few tools exist to support them.
Why it matters
Patients considering brain-stimulation and other advanced neurotechnologies face complex risk–benefit choices, especially early in their disease. A tested decision aid could help patients, caregivers and clinicians make better-informed, shared choices about whether and when to use these treatments. It could also help guide the responsible, ethical use of new neurotechnologies.
Known grants
From NIH and NSF research grants. Labs often have other funding we can't see.
Closest labs
Ilene Hollin
Temple University, PA·Medicine & Clinical Research·Early-career
Describe quality-of-life priorities and how they shape decisions among patients and caregivers at each phase of lung transplant, and among clinicians, using semi-structured interviews.
Larry Jackson
Duke University, NC·Medicine & Clinical Research·Early-career
Interview Black and White patients with non-valvular atrial fibrillation and their clinicians to identify barriers to and facilitators of shared decision making about oral anticoagulants, the blood thinners that prevent stroke.
Fahad Saeed
University of Rochester, NY·Medicine & Clinical Research
Determine whether the CKD-EDU palliative care intervention, a decision aid plus palliative clinician coaching, reduces decisional conflict at one month in patients aged 75 or older with advanced CKD.
The school
Pennsylvania State University: 60 labs on PI Pages, $1.3B a year on research, 743 research doctorates a year.
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